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NEW Added to close a syllabus gap — "principles of ethical decision-making" is a listed item under Intensive Care.

Ethics & decision-making

The four principles, consent and capacity, end-of-life decisions in intensive care, and organ donation.

The four principles

PrincipleMeaning
AutonomyRespect for the patient's right to make their own informed decision — including the right to refuse treatment, even where refusal leads to death
BeneficenceActing in the patient's best interest
Non-maleficence"First do no harm" — weighing burden against benefit
JusticeFairness in the distribution of finite resources, and equal treatment of equal need

These are prima facie principles — none automatically outranks the others; ethical reasoning is the work of balancing them in a specific case.

Consent & capacity

Valid consent requires three things

  • The patient must have capacity, be adequately informed, and give consent voluntarily without coercion.

Capacity — the four-part test

  • To have capacity a person must be able to: understand the information, retain it, weigh it in the balance, and communicate the decision.
  • Capacity is presumed until shown otherwise; it is decision-specific and time-specific; and an unwise decision is not evidence of incapacity.
  • If capacity is lacking, act in the patient's best interests, taking account of previously expressed wishes, an advance decision, a lasting power of attorney, and the views of those close to them.
  • Montgomery shifted the standard of information disclosure from what a reasonable doctor would say to what this particular patient would consider material — including reasonable alternatives.

Special situations

  • Emergency: treat without consent under the doctrine of necessity, limited to what is immediately required.
  • Children: a competent child may consent (Gillick competence); refusal by a competent child can in some jurisdictions be overridden. Know your local law.
  • Jehovah's Witnesses: a competent adult's refusal of blood must be respected, even if fatal. Discuss acceptable alternatives in advance — cell salvage, tranexamic acid, erythropoietin — and document precisely which products are refused.

End-of-life decisions in ICU

  • Withholding and withdrawing treatment are ethically and legally equivalent — a treatment that is not working may be stopped just as it might not have been started.
  • Futility: treatment that cannot achieve its intended physiological goal, or cannot deliver a benefit the patient would value. There is no obligation to provide it.
  • Doctrine of double effect: giving a drug intending to relieve suffering is permissible even if it may foreseeably shorten life — the intention is what distinguishes it from euthanasia.
  • DNACPR decisions are clinical decisions about one intervention only. They must be discussed with the patient or their representatives, and do not imply withdrawal of other treatment.
  • Decisions should be consultant-led, multidisciplinary, documented, and revisited. Seek a second opinion or clinical ethics advice where there is disagreement.

Organ donation

  • DBD — donation after brainstem death. Requires formal brainstem death testing: known irreversible cause, exclusion of hypothermia (>34 °C), drugs, and metabolic or endocrine disturbance. Two doctors test on two occasions; the apnoea test completes it.
  • DCD — donation after circulatory death, following planned withdrawal of treatment.
  • The dead donor rule: organ retrieval must not be the cause of death.
  • Separate the teams: those making the decision to withdraw must be independent of the transplant team.
  • Many jurisdictions now operate deemed (opt-out) consent — but the family is still always consulted. Know your local framework.

Legal detail varies by country. The principles are portable; the statute is not — check the framework where you practise and where you sit the exam.